Thursday, June 28, 2012

A Rockstar Angel

Isabella Joanne Santos
March 9, 2005 - June 28, 2012

Heaven gained an angel.

When you get there,  you can find her pretty easily.
Her bright red hair will be flowing behind her 
as she'll be twirling and dancing 
in a pink dress and matching cowboy boots.
Probably singing a Taylor Swift song...
without a doubt you'll be able to hear her smile through the words.

Dance and be free, Sweet Isabella.
You will be missed deeply by your family and friends.

Celebration Service will be July 7, 2012 at 2 pm:
Calvary Church
5801 Pineville-Matthews Road
Charlotte, NC 28226

Friday, June 1, 2012

The Happiest Place on Earth

For Isabella Santos, the happiest place on earth is Disney World.  


Please pray that this sweet Rockstar will be well enough to travel to Orlando on Monday, so that she can enjoy her favorite place in the world with all of the people that love her most.  Hopefully the sight of Cinderella's castle will work its magic and provide some happy memories for the Santos family.

Pray for peace, comfort, and safe travels for the family.
For a complete update on Isabella's journey, view her CaringBridge site.

Thursday, May 10, 2012

Rockstar Jackson

Meet our newest Rockstar - Jackson.
At age 5, he has already driven a digger and knows how to read!
He loves Batman {especially Batman cake that turns his tongue black!}.
He enjoys jumping on the trampoline with his little brother, Colton.
He's daring enough to go down a 20-foot inflatable slide ... 
{many, many, many times}!
He recently made his T-ball debut in April 2012.

His winning, 'never-give-up' attitude on the T-ball field 
undeniably comes fromhis winning, hopeful attitude in life.

For over two years, Jackson has been fighting cancer.  
In January 2010, he was diagnosed with 
Stage IV Hepatoblastoma (liver cancer) 
that had metastasized to both of his lungs.  
After many rounds of chemotherapy, a liver transplant, 
and two lung surgeries, Jackson continues to bless his family 
with his sweet smile and infectious laughter.

Pray for this little fighter and follow Jackson's journey at his CaringBridge site. 
Rohr Rockstars Founder, Trish, and her new boyfriend, Jackson!

Monday, April 23, 2012

Joyful Noise Needed for Emily

Make some joyful noise and join us as we pray for our PA Rockstar - Emily Whitehead.  This little 6-year old has gone through more in the past 2 days than any child should experience in their lifetime.  After a bad reaction to her T-cell infusion, she is fighting for her life.  Though she is currently sedated so that her body can rest and heal, her dad has been telling her about all the people praying for her. Overwhelm Emily's facebook page with prayers and positive thoughts. Twitter users?!? #PrayingForEm is in support of our PA Rockstar Emily Whitehead. Send out a tweet in her honor and keep the hash tag going viral!!!  Let Emily and her family know that the Rockstar Nation is fighting alongside them.  

Rock on. Rock hard. Pray harder.

Emily playing drums like a Rockstar during Music Therapy {March 21, 2012}

Friday, March 23, 2012

Rockstar Emily

 Meet Rockstar Emily
{from Rohr Rockstars' Pennsylvania Chapter}

Emily is a 6 year old who is currently rockin' her way through treatment at Children's Hospital of Philadelphia. During her stay, she has already earned a rainbow of  "Beads of Courage" marking her bravery and strength along her tough journey. 

Diagnosed with acute lymphocytic leukemia (ALL) in May 2010, Emily responded well to chemotherapy, but relapsed in October 2011 after starting first grade, and again in February 2012 {two weeks before a scheduled bone marrow transplant}.

She is one tough little girl who loves playing with her dog Lucy, giggling with {and at} her daddy, and reading books with her mommy.  Emily makes the world a little brighter with her purple and pink clothes and her sweet smile. 

Keep up with Emily's journey on CaringBridge.

Emily :: First day of first grade :: August 2011

Emily and Lucy :: August 2010

Monday, March 19, 2012

Rockstar Zac

Our newest Rockstar, Zac, is like a fish in the water 
and a superstar in sports.
He loves to swim, dribble a basketball, and play soccer.
This little athlete loves to fuel up on Chik-Fil-a and vanilla ice cream.

Zac is like a superhero hidden in a 4-year old's body!
He is fast, he is helpful, and he is charming.
{He has the sweetest, shy smile and a set of dimples 
that he will share with you if you're lucky!}
He loves Iron Man, Spider-Man, and Batman.
He is strong, brave, and tough ... just like his heroes.

Zac has been battling acute lymphocytic leukemia (ALL) since April 2011.  
He has had two seizures {in response to specific chemo he received} 
and he experienced paralysis on his left side.  
After weeks of hard work in rehab/PT/OT, Zac can walk and RUN
...and he is FAST!

Rockstar or Superhero?  You decide.

Superhero Zac and his super-strong sidekick Mommy {Natalie}
opening his iPad from Rohr Rockstars

Rock on Zac!

Saturday, February 18, 2012

Kick It ... Like a Rockstar

On March 25th, friends of Rohr Rockstars,
The "We Love Connor Posse," 
will be hosting an all day "fit fest"
to support Connor, a three year old battling
Stage 3 Non-Hodgkin's Lymphoma, and his family.  
Hourly fitness classes at Ultimate Crossfit Southend 
{in Dilworth area of Charlotte}will be offered. 
Come for a day of family fun, fitness, and a chance to kick cancer in the tail!

Funds raised will be donated to Connor's family
to supplement medical/treatment costs 
and be donated to CureSearch to honor 
the life of an extraordinary child, Claire Ratliff. 

For more information about the Fit Fest, or to donate to the cause, go here
for more information about Connor's journey, go here.

For information about Curesearch, 
a foundation which the Ratliff's are passionate about, go here.

Tuesday, January 24, 2012

A Rockstar Returns

Sweet Zoe is back at school!
Her recent scans came back clean
and she was cleared to start school!

This little girl will definitely have some life lessons to share with her class.
We know she will ROCK as both a student and a friend.

Good luck, Zoe!

Wednesday, January 18, 2012

Story of Hope on Charlotte Today Show

Featured on Charlotte Today’s Story of Hope sponsored by Levine Children’s Hospital on Tuesday, January 18, 2012, Trish shares her story of hope regarding her husband Eric and the foundation they created.  After learning about Eric’s brain tumor in 2010, the couple decided to make that moment count; while adjusting to a “new normal,” Trish and Eric decided that “the best way to beat cancer is to reach out and help others.”  With Trish’s background in education as a teacher at Charlotte Country Day School, she realized that there was a great need in the world of pediatric cancer.  Rohr Rockstars was founded and Rohr decided to “help the kids and support their education while they are going through treatment.”

“Education offers hope.  It is a promise of a bright future and when we can support them with their education, we are saying to them that this {cancer} will only be one moment of your life.”

Watch the entire interview {below} and see how Trish shines like a Rockstar speaking with passion and dedication.

Rohr Rockstar Founder on Charlotte Today

Tuesday, January 17, 2012

Remembering a Rockstar

Claire Elizabeth Ratliff
August 30, 2009 - January 17, 2012

Speechless and heartbroken at the passing of this precious child.
But rejoicing that she is pain-free and cancer-free in heaven
with a Heavenly Father that loves her beyond our comprehension.

We are all blessed to have known her and loved her 
during her short, but inspiring life.

For those who suffer,
and those who cry this night,
give them repose, Lord;
a pause in their burdens.
Let there be minutes
where they experience peace,
not of man
but of angels.
Love them, Lord,
when others cannot.
Hold them, Lord,
when we fail with human arms.
Hear their prayers
and give them the ability to hear You back
in whatever language they best understand.
-Margaret A. Davidson

Thursday, January 12, 2012

Bald is Beautiful

Rock on!  

Rohr Rockstars founder, Trish Rohr, on baldness and coping through play.

"Inspired by her husband's battle with the disease, her work with kids who have cancer has shed new light on what it means to be bald: It's not the disease, it's the attempt to fight it.
"It's our body's sign that we're launching this battle, so I think using toys to convey that message is really powerful," she says."