As we grow the foundation, share the mission, and strive for brand awareness, we have excitedly partnered with several talented and generous artists. Perry Swenson Livonius of Perfectly Perrywinkle is a new friend of the Rockstars. Once you meet her, you will love her!
After recently getting married, I have new hopes for the future: to start a family and give back to the community. I retired from competitive golf after playing professionally for six years on the LPGA/LPGA Futures Tour. Though I still keep a busy schedule on the golf course playing at charity golf outings and pro-ams, I started Perfectly Perrywinkle as a fun hobby and creative outlet. Not only can my unique custom-made headbands make a fashion statement, but also they can be a platform to help raise awareness about charities that are close to my heart. I am committed to supporting Folds of Honor Foundation and Rohr Rockstars by donating a portion of the profits from the sales of my headbands to these organizations. Recently, it was my privilege to design "The Rockstar Collection" for Rohr Rockstars. It is my hope that the young girls and women who wear my headbands will understand that they, too, are rockstars ... helping to empower children facing cancer and other long term illnesses to reach their academic goals.
Enjoy a special sneak peek of Rockstar headbands ... soon available to you.
Check out Perfectly Perrywinkle's Etsy shop. The Rockstar Collection has not yet officially been released, but Perry has generously committed to donating 50% of her profits from the sales of this special collection to Rohr Rockstars. You rock, Perry!
She only likes to wear dresses, skirts, and cute shoes.
She enjoys being a Mommy to her American Girl dolls.
She loves her kitty Jake.
Pink and purple are her favorite colors.
Her dreams are selfless and big.
"I want there to be no more cancer!
I want kids to be able to play and go to school,
not be in the hospital feeling sick."
Isabella knows what it is like to live with cancer, to miss school, to feel sick. She has been fighting cancer for four years. In October 2007, when Isabella was 2, she was diagnosed with Stage 4 Neuroblastoma. Since then she has received many rounds of chemotherapy, radiation, experimental treatments, and surgery. She has been declared disease free several times, but she has relapsed several times. Isabella is a fighter. Her doctors lovingly refer to her as the "girl with nine lives".
We think she is a ROCKSTAR in the biggest and best sense of the word.
Rockstar Isabella and her kitty, Jake
To follow Isabella's journey, visit her CaringBridge site. Or visit The Isabella Santos Foundation page. Through the foundation, this ROCKSTAR family and its supporters have raised over $140,000 for Neuroblastoma research and organizations like The Ronald McDonald House of Charlotte and The Make A Wish Foundation.