Saturday, July 23, 2011

A Rockstar's Journey

To date, Rohr Family Foundation {RFF} has identified and begun supporting three Rockstars.  While their journeys, personalities, and circumstances are all unique, they have all proven that they are fighters {miracles!} and  are 100% worthy of being called a "Rockstar."  

RFF, in its commitment to support the Rockstars' educational needs from their diagnosis through their high school graduation, has recognized four critical phases of support.  Each phase will offer individualized support and services tailored to the student's specific learning needs in order to encourage a successful life-long learner.

Phase One ::  Diagnosis and Hospitalization
Each Rockstar will receive an age appropriate Rockstar Toolbox designed to supplement the educational needs and skill development for children from Pre-Kindergarten through 4th grade.  Each Toolbox includes a workbook designed to cover national educational standards for skills and curriculum.  These Toolboxes can be used to create, learn, distract, explore, and entertain during long days in the hospital or clinic.

Phase Two :: Homebound and Continued Treatment
A technology-based learning device such as an iPad or Color Nook (according to age, development, and dexterity) will be made available to the Rockstar if appropriate.  These devices can be used while the student is at home, recovering between treatments, or while the student is back in the hospital or clinic, receiving additional treatment.  During this phase, if applicable, an Indiviualized Educational Program {IEP} will be written in order to facilitate a seamless transition to Phase Three.  

Phase Three :: Re-entry
Rockstars will return to a formal learning environment during this phase; their re-entry will be supported by RFF in the following ways:  the Rockstars will receive emotional counseling, in-class services, Ed Psych reports, and a representative from RFF will serve as a liaison between the Rockstar's parents and school representatives/teachers/IEP team members.

Phase Four :: Continuation 
Through 12th grade, Rockstars will continually receive support from RFF as needed.  While the physical effects of chemotherapy will long be gone from the Rockstar's body, it is has been speculated that there are latent cognitive and developmental effects.  As such, Rockstars will receive Ed Psych reports every two years; RFF will receive, compile, and study the data, as well as act as a resource and advocate for the Rockstar and his/her family. 

We look forward to introducing you to the Rockstars and providing ways for you to help support their journeys.

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